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CheckOrphan NewsFlash, March 2,…
3/02/2010
CheckOrphan NewsFlash for Tuesday, March 2, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash January 15,…
1/15/2010
CheckOrphan NewsFlash for Friday, January 15, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash January 11,…
1/11/2010
CheckOrphan NewsFlash for Monday, January 11, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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Brain, Blood, and Iron: Advances…
13–14 March, 2010
The overall objectives of this workshop are to: (1) define NA and NBIA…
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Diamond Blackfan Anemia…
13–15 March, 2010
This conference is expected to generate immediate and long-term…
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Interdisciplinary Training…
15–16 March, 2010
The goal of this meeting is to mentor the career development of a “…
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ICORD 2010: Sixth International…
18–20 March, 2010
The VI International Conference on Rare Diseases and Orphan Drugs (ICORD…
Events
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Acute Lymphoblastic Leukaemia (…
2/01/2010 09:23
From: Abidemi Uruejoma
Views: 630
Leukaemia diagnosis, and an expert explains the common symptoms and treatment options.
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Cystinosis Research Foundation
1/29/2010 22:22
From: Christine DuBois
Views: 610
An introduction into the lives of three families with children diagnosed with cystinosis and the…
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Introduction to Friedreich's…
1/15/2010 10:50
From: Abidemi Uruejoma
Views: 739
Introduction to Friedreich's Ataxia and FARA
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PKU and Us - WINNER of the Rare…
12/06/2009 02:50
From: Peggy Steevensz
Views: 1,255
A toddler must have a protein restricted diet due to the rare metabolic condition PKU. With this…
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Aplastic Anemia Awareness
10/21/2009 16:07
From: CheckOrphan
Views: 1,880
Aplastic Anemia Awareness week is December 1-7. Share this video with everyone you know &…
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Aplastic Anemia Cause, Symptoms…
10/21/2009 15:45
From: CheckOrphan
Views: 1,588
http://www.burke-eisner.com/practice-... Video on what Aplastic Anemis is and what some of its…
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Baby Born Missing 30% of His…
10/21/2009 15:31
From: CheckOrphan
Views: 1,688
This baby boy was born missing 30% of his skin due to "aplasia cutis congenita." It is an…
