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CheckOrphan NewsFlash April 30,…
4/30/2010
CheckOrphan NewsFlash for Tuesday, March 30, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash April 9,…
4/09/2010
CheckOrphan NewsFlash for Friday, April 9, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash April 1,…
4/01/2010
CheckOrphan NewsFlash for Thursday, April 1, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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Men 2010: 12th International…
16–18 September, 2010
This two-day meeting will provide a forum for educating basic and clinical…
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Ribonuclease H2010
20–22 September, 2010
We expect to bring together scientists interested in making as much…
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Third Annual Ultra Orphan…
27–29 September, 2010
Centric Health Resources Presents Third Annual Ultra Orphan Conference…
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Brain, Blood and Iron: Joint…
1–2 October, 2010
The overall objectives of this workshop are to (1) define NA and NBIA…
Events
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Topline Results From Phase 3 Trial of Sunitinib With Erlotinib in Advanced Non-Small Cell Lung Cancer (NSCLC)
Tuesday, August 24, 2010
NEW YORK -- Pfizer Inc. (NYSE :PFE) announced today that the SUN 1087 trial of sunitinib in combination with erlotinib versus erlotinib demonstrated a statistically significant improvement in Progression-Free but not in Overall Survival in patients with previously treated advanced non-small cell O
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Hepatitis E Vaccine Works in Chinese Study, May Fight 'Scourge' of Disease
Monday, August 23, 2010
An experimental vaccine prevented hepatitis E in all patients who received it in a study, making it a crucial development in combating the “scourge” of the virus, the U.S. Centers for Disease Control and Prevention saidMore than 112,000 healthy people age 16 to 65 from Jiangsu province
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Cost of Prostate Cancer Care Varies With Initial Treatment Choice
Monday, August 23, 2010
A new analysis has found that short-term and long-term costs of prostate cancer care vary considerably based on which treatment strategy a man initially receivesPublished early online in Cancer, a peer-reviewed journal of the American Cancer Society, the study finds that treatments that may be les
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Alexion Receives FDA Approval of Rhode Island Manufacturing Facility for Soliris(R) Supply
Monday, August 23, 2010
CHESHIRE, Conn. -- Alexion Pharmaceuticals, Inc. today announced that the US Food and Drug Administration (FDA) has approved Alexion's Rhode Island manufacturing facility (ARIMF) in Smithfield, Rhode Island as a second source of commercial supply for Soliris(R) (eculizumabEarlier this year, Alexio
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EU Asked to Investigate Drugs in Football
Monday, August 23, 2010
A group of MEPs has asked the European Commission to establish a database to collect information on drugs taken by football players during their careers and to assess the causes of football-related disease, such as the deadly Amyotrophic Lateral Sclerosis (ALSItalian MEP Salvatore Iacolino (Europe
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Is It Time We Paid More Attention to Rare Diseases?
Monday, August 23, 2010
When Hannah Ostrea was five months old, she was diagnosed with Gaucher's disease, a genetic condition in which the body lacks the enzyme needed to break down a fatty waste product called glucocerebroside, leaving it to accumulate in the body's organsThe disease is painful, with the excess glucocer
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FSH Society Applauds Study Pinpointing Genetic Causes of FSHD, Most Common Muscular Dystrophy
Monday, August 23, 2010
WATERTOWN, Mass. -- "This is what we have all been working towards and fighting for," says Daniel Paul Perez, co-founder, president and CEO of the FSH Society and a 48-year-old patient with facioscapulohumeral muscular dystrophy (FSHD), applauding the researchers whose study on yesterday's "At las
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YoCream Raises Funds for Brian Grant Foundation for Parkinson's Awareness and Education
Monday, August 23, 2010
PORTLAND, Ore. -- YoCream International, Inc. (Pink Sheets: YOCM), raised $8,000 for the Brian Grant Foundation at a fundraising event held at their Company Store in Portland OregonThe Company and Foundation announced that all sales revenue generated on July 31st at the YoCream Frozen Yogurt Com
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Shoestring Gene Therapy
Monday, August 23, 2010
On a frigid weekend in the winter of 2004, a medical charity held a meeting at the Yarrow Hotel in Park City, Utah, to discuss a problemIt had been nearly ten years since geneticists Irwin McLean and Frances Smith had discovered the genetic underpinnings of pachyonychia congenita, a rare and extre
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US Oncology Helps Deliver Latest Cancer Therapies Through Local Community Access to Cutting Edge Research
Friday, August 20, 2010
THE WOODLANDS, Texas -- US Oncology, Inc., the nation's leading integrated oncology company, announced today that in less than two decades it has played a role in the development of 42 novel cancer therapies approved by the US Food and Drug Administration (FDATasigna® (nilotinib) capsules, a
