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CheckOrphan NewsFlash April 30,…
4/30/2010
CheckOrphan NewsFlash for Tuesday, March 30, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash April 9,…
4/09/2010
CheckOrphan NewsFlash for Friday, April 9, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash April 1,…
4/01/2010
CheckOrphan NewsFlash for Thursday, April 1, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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8th Annual Encephalitis Conference
Monday, 16 August, 2010
Encephalitis Global, Inc. is happy to invite FACES (Friends And Caregivers…
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David W. Smith Workshop on…
27 August – 1 September, 2010
The goal of the Smith Workshop is to bring together a diverse group of…
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The 15th International Symposium…
29 August – 1 September, 2010
Studies on the sinusoidal cells are becoming increasingly important in…
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Immunotherapy in Pediatric…
9–10 September, 2010
Goals of this conference are to (1) enhance collaboration and cross-…
Events
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Lung Disease Didn't Change Course of Lake Dallas Cross Country Runner
Monday, November 9, 2009
Lake Dallas -- The crazy stares and the questions usually come at the meets. They come from people who don't quite know Taylor Lively's story.Last Friday, at the District 5-4A cross country meet, Lively won. He does that a lot. The kid in the Lake Dallas High School uniform with golden brown hair and a mask covering his mouth crosses the line before anyone else and then keels over. "They…
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U-M Cystic Fibrosis Center Makes Great Strides, Receives National Award
Wednesday, November 4, 2009
Ann Arbor, Mich. -- People with cystic fibrosis can expect to live a longer life despite the genetic, life-threatening disease, because of advances made at the University of Michigan Health System.Great strides have been made in the care of individuals with cystic fibrosis, or CF, a disease that impairs the proper functioning of vital organs. Much of this progress has been made at the UMHS, where…
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Longview Boy Copes With Rare Combination of Medical Conditions
Wednesday, November 4, 2009
Conner Reed Jones has defied the odds by having one disease that’s life-threatening and another condition that few people have ever heard of.Conner, 6, has cystic fibrosis, a genetic disease that causes mucus to build up and clog his lungs.He also has prune belly syndrome, which means he’s lacking abdominal walls and has urinary problems.
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Solvay Pharmaceuticals Awards $17K SolvayCARES(SM) Scholarship to College Student With Cystic Fibrosis
Friday, October 30, 2009
Marietta, Ga. -- Solvay Pharmaceuticals, Inc. today announced that Amanda Rudd has been awarded the title of 2009 Thriving Student Achiever for her creative entry expressing her dream for the future.
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DiscoveryBioMed Awarded $300,000 NIH Grant for Cystic Fibrosis Drug Research and Development
Thursday, October 29, 2009
DiscoveryBioMed, Inc. (DBM) today announced that it has been awarded a Phase 1 Small Business Innovation Research (SBIR) grant by the National Institutes of Health (NIH). The $308,000 grant will be used to advance certain small molecule drug discovery programs designed to correct the genetic mutation most common to cystic fibrosis (CF).
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Gilead's Aztreonam for Inhalation Solution to Be Reviewed by FDA Anti-Infective Drugs Advisory Committee on December 10, 2009
Tuesday, October 27, 2009
FOSTER CITY, Calif. -- Gilead Sciences, Inc. (Nasdaq:GILD) today announced that aztreonam for inhalation solution, an investigational product for the treatment of infections due to Pseudomonas aeruginosa (P. aeruginosa) in patients with cystic fibrosis (CF), is scheduled to be reviewed by the Anti-Infective Drugs Advisory Committee of the U.S. Food and Drug Administration (FDA) on December 10,…
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New Clinical Guidelines for Exacerbations in Cystic Fibrosis
Friday, October 23, 2009
The American Thoracic Society has released new clinical guidelines for the treatment of exacerbations in cystic fibrosis based on a review of the literature on current clinical practices.
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Cystic Fibrosis Foundation to Honor USC Dean Dr. Elizabeth Daley at Inaugural Alfred Hitchcock Legacy Tribute Gala
Thursday, October 22, 2009
LOS ANGELES - Cystic Fibrosis Foundation, Los Angeles Chapter, hosts its inaugural "Alfred Hitchcock Legacy Tribute Gala," honoring Dr. Elizabeth Daley, Dean, USC School of Cinematic Arts, Saturday, November 7 at the Globe Theater at Universal Studios, home for more than 40 years to the iconic filmmaker.The Hitchcock family, including daughter Pat and granddaughters Mary and Tere serve…
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Cape Breton Chapter of Cystic Fibrosis Foundation to Get Charter on Saturday
Wednesday, October 21, 2009
SYDNEY — The Cape Breton chapter of the Canadian Cystic Fibrosis Foundation will mark an historic occasion this weekend during the foundation’s Atlantic regional meeting in Sydney.On Saturday, the island chapter, which had been operating as a probationary satellite chapter since its inception two years ago, will officially receive its charter and become the foundation's 51st chapter.
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Furry Favourites' Picnic for Kids
Tuesday, October 20, 2009
Today is the day the teddy bears have their picnic - and it would be much better not to go alone.The 29th annual Teddy Bears' Picnic fund-raiser for The Children's Hospital at Westmead will take over Rosehill Gardens.Organisers hope to equal the success of last year's event, which attracted 12,000 people and raised more than $250,000.Joining crowds for the first time will be sisters Taylor, 7,…
