DANA POINT, Calif. - All Kids Deserve To Have Hope For A Cure – The 'Vote4Hope' Pepsi Refresh Rare Disease Campaign starts today. The Children's Rare Disease Network (www.crdnetwork.org) and The Global Genes Project (www.globalgenesproject.org) are inviting the public, as well as caregivers,

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AUSTIN, Texas -- Luminex Corporation (Nasdaq: LMNX), the worldwide leader in multiplexed solutions, today announced the full commercial launch of its xTAG® Cystic Fibrosis 60 Kit v2, a new diagnostic test that can simultaneously screen a single blood sample for up to 60 cystic fibrosis-causing

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PITTSBURGH -- Vitamin D may be an effective therapy to treat and even prevent allergy to a common mold that can cause severe complications for patients with cystic fibrosis and asthma, according to researchers from Children's Hospital of Pittsburgh of UPMC, the University of Pittsburgh School of R

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The U.S. Senate last night passed the “Improving Access to Clinical Trials Act” (I-ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizationsThe legislation enables patients with rare diseases to parti

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A Florida State University biochemist who studies a group of proteins linked to several inherited diseases has received a major grant to advance his research toward a better understanding of cellular secretion, which is linked to a wide range of diseasesThat research could one day lead to new trea

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Sarah Mulligan dreams of holding down a job, travelling overseas and studying at universityThe 24-year-old Earlville woman’s wants are simple, but as a person with cystic fbrosis, they are also simply unattainable – for nowBut that won’t stand in her way when it comes to buildin

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NORTH ANDOVER -- Amanda Tobin was forced to get creative when her costume for a dance recital didn't arrive on timeSo the 17-year-old grabbed a paint brush and made her own, along with one for her partner in a duet, using a splatter technique that soon became a hit with her colleagues at the North

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A 7-year-old Longview boy who touched hundreds of lives while he lived is continuing to touch thousands of lives across the world even after his deathConner Jones died June 24 from complications of cystic fibrosis, a genetic disease that causes mucus to clog the lungs, and prune belly syndrome, a

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WASHINGTON -- U.S. regulators are exploring how to make it easier and cheaper for drug companies to develop treatments for rare diseases -- an underserved slice of the market that typically offers slim profitsThe U.S. Food and Drug Administration already offer companies grants and guaranties seven

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MONTEREY, Calif. -- In a head-to-head, Phase III clinical trial of Cayston delivered by the Altera Nebulizer System versus tobramycin inhalation solution in cystic fibrosis patients with Pseudomonas aeruginosa, the co-primary endpoint of non-inferiority for mean percent change in forced expiratory

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