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CheckOrphan NewsFlash, March 2,…
3/02/2010
CheckOrphan NewsFlash for Tuesday, March 2, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash January 15,…
1/15/2010
CheckOrphan NewsFlash for Friday, January 15, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash January 11,…
1/11/2010
CheckOrphan NewsFlash for Monday, January 11, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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Brain, Blood, and Iron: Advances…
13–14 March, 2010
The overall objectives of this workshop are to: (1) define NA and NBIA…
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Diamond Blackfan Anemia…
13–15 March, 2010
This conference is expected to generate immediate and long-term…
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Interdisciplinary Training…
15–16 March, 2010
The goal of this meeting is to mentor the career development of a “…
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ICORD 2010: Sixth International…
18–20 March, 2010
The VI International Conference on Rare Diseases and Orphan Drugs (ICORD…
Events
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Study Shows C1-Esterase Inhibitor Concentrate Rapidly Relieves Acute, Successive Attacks of Hereditary Angioedema
Tuesday, March 2, 2010
NEW ORLEANS -- C1-esterase inhibitor (C1-INH) concentrate is an effective, well-tolerated therapy that rapidly relieves acute swelling attacks and successive attacks at any body location in patients with hereditary angioedema (HAE), a rare and serious genetic disorder, according to data presented
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KALBITOR(R) (Ecallantide) Now Commercially Available
Wednesday, February 3, 2010
CAMBRIDGE, Mass. -- Dyax Corp. (NASDAQ:DYAX) announced today that KALBITOR(R) (ecallantide) for the treatment of acute attacks of hereditary angioedema (HAE) in patients 16 years of age and older is now commercially available in the United StatesHAE is a rare, genetic disorder characterized by sev
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CSL Behring Launches Support System for Hereditary Angioedema Healthcare Providers, Patients and Caregivers
Thursday, January 28, 2010
KING OF PRUSSIA, Pa. -- CSL Behring announced today the launch of the Berinert® Expert Network (B.E.N.™), a full-service support program for healthcare providers and for hereditary angioedema (HAE) patients and their caregiversHAE is a rare and serious disorder that causes swelling in va
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Dyax Launches HAE Hope, a New Online Resource for Patients With Hereditary Angioedema
Friday, January 15, 2010
CAMBRIDGE, Mass. -- A new, online resource is now available for patients with hereditary angioedema (HAE), their caregivers and physiciansThe website, www.HAEHope.com, launched today by Dyax Corp. (NASDAQ: DYAX), offers resources to help patients and their families better understand and manage HAE
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ViroPharma Expands Global Licensing, Commercialization and Development Rights for Cinryze(TM) (C1 Esterase Inhibitor [Human])
Friday, January 15, 2010
EXTON, Pa. -- ViroPharma Incorporated (Nasdaq: VPHM) today announced that it has signed an agreement with Sanquin Blood Supply Foundation for rights to develop, file regulatory dossiers, and commercialize Cinryze(TM) (C1 esterase inhibitor [human]) for hereditary angioedema (HAE) as well as for Th
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ViroPharma Provides 2010 Cinryze(TM) (C1 Esterase Inhibitor [Human]) Outlook
Friday, January 15, 2010
EXTON, Pa. -- ViroPharma Incorporated (Nasdaq: VPHM) today announced that Vincent Milano, president and chief executive officer of ViroPharma, will provide an overview of the company's business and present a financial update during the 28th Annual J.P. Morgan Healthcare ConferenceAs previously ann
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ViroPharma Expands Global Licensing, Commercialization and Development Rights for Cinryze(TM)
Monday, January 11, 2010
EXTON, Pa. -- ViroPharma Incorporated (Nasdaq: VPHM) today announced that it has signed an agreement with Sanquin Blood Supply Foundation for rights to develop, file regulatory dossiers, and commercialize Cinryze(TM) (C1 esterase inhibitor [human]) for hereditary angioedema (HAE) as well as for Th
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A Closer Look at Hereditary Angioedema: Expert Perspectives on Optimal Management
Thursday, January 7, 2010
VOORHEES, N.J. -- Hereditary angioedema (HAE) is a disease affecting between 4,000 and 10,000 people in the United States each year, causing recurrent attacks of intense localized edemaHAE can be both difficult to diagnose and difficult to treat. Symptoms of HAE can resemble other more common cond
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Pharming Confirms Interaction With US FDA for Rhucin
Monday, December 14, 2009
Leiden, The Netherlands -- Biotech company Pharming Group NV (“Pharming”) (NYSE Euronext: PHARM) today confirmed its interactions in a pre-BLA meeting with the US Food and Drug Administration (FDA) on a proposed marketing application (BLA or Biologics License Application) to obtain In
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Hereditary Angioedema (HAE) National Surveillance Project
Friday, October 23, 2009
VOORHEES, N.J. - Hereditary angioedema (HAE) is an autosomal dominant disease estimated to afflict between 1 in 10,000 to 1 in 50,000 people in the United States.Patients with HAE suffer from recurrent attacks of intense localized edema involving the skin, airway, extremities, and visceral organs. Management of HAE may involve short-term treatment and long-term prophylaxis. There are currently…
