A Malvern mum whose son suffers from a rare genetic disorder has thanked a marathon runner who raised money for research into the diseaseJeremy Laycock ran in this year's London Marathon and raised over £1,500 for the Cornelia de Lange Syndrome FoundationRachel Davies, whose son Edward suff

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A Dunblane mum of two is fighting for a drug which could save her sightJoyce Jaffray (37) has an extremely rare genetic condition called PXE, one of the main problems associated with it being loss of eyesightShe lost almost all her vision in her left eye six years ago, but in recent weeks the sig

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BALDWIN CITY -- A 2000 graduate of Baker University will be featured in a one-hour documentary at 9 p.m. Aug. 22 on The Learning Channel, the university said TuesdayJoAnne Fluke, who was named Ms. Wheelchair Kansas in 2005, was born with caudal regression, a rare congenital disorder in which legs

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A six-year-old girl is finally out of hospital and hitting the beach with her familyA trip to Devon was a dream come true for Daisy Palmer, from Langdon Hills, who has left hospital after a six-month stayShe spent half of this year hooked up to a feeding machine on a ward in the Royal London Hosp

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A Russian television crew is in Lafayette this week to make a documentary about pain, including a look at people who don't feel painWith the help of the Internet, senior reporter Pavel Lobkov discovered Lafayette's Roberto Salazar, 9. The boy has a rare genetic condition called CIPA (congenital in

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A foundation named for a local girl with a rare genetic disorder needs your helpHannah's Hope Fund in the running for a big national grantThe fund, just one organization trying for a $250,000 grant from the Pepsi Refresh ProjectHannah Sames of Rexford has Giant Axonal Neuropathy. The illness has

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Caring for his daughter, who was born with a rare defect, has inspired James Toal to find his true calling in lifeAt 33, he has given up his job in the property law business to train as a paramedicAnd it’s all thanks to his three-year-old daughter, Rosie, who was born with DiGeorge Syndrome

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A Middlewich man, who’s rare form of cancer makes him one in a million, will take on the heights of Snowdon for charity this monthSteve Treweeks, 44, of Lewin Street, was diagnosed with the abdominal cancer PMP (pseudomyxoma peritonei) in 2007 – a condition so rare only one in 1 millio

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HUNTSVILLE, AL -- Hundreds of Huntsville-area children will head back to school this morning sporting fresh buzz cuts and brand new backpacksAnd it's got nothing to do with the tax-free shopping weekend that wrapped up at midnight SundayIt's got everything to do with the banner along Poplar Avenu

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Jennifer Goodman Linn has one main mantra: Just keep goingAfter being diagnosed in 2004 with sarcoma, a rare form of cancer, the former Nickelodeon marketing executive vowed that if she survived she would do something to show her gratitudeThis year, the 39-year-old looks to surpass $5 million in

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