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    Caerwent Family Plans Fund-Raising Gala Ball for Charity

    Monday, January 10, 2011

    The family of a little girl from Caerwent, who suffers from a rare heart condition are seeking to help the charity that has supported them over the yearsFour-year-old, Amelia Hine's uncurable heart condition, tricuspid atresia, was discovered during her mum's 20-week scanIt was explained to Lisa

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    Rare Disease Confines Boy to His Home

    Monday, January 10, 2011

    FRANKLIN, Ind. -- A typical day for Jacob Phillips sounds like something most 11-year-olds would envyHe plays his Nintendo Wii with dozens of games. Toy trains weave through his family's Franklin home, going through make-believe communities he's set upUsing thousands of Lego bricks and a digital

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    Charlie Knuth in "Critically Stable" Condition

    Friday, January 7, 2011

    MINNEAPOLIS, Minn. -- The mother of 4-year-old Charlie Knuth says her son is in "critically stable" conditionThe Fox Valley boy went into respiratory failure Tuesday night after getting an infection in his lungs. Knuth, from Darboy, is battling a rare skin condition called epidermolysis bullosa, c

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    Acts of Kindness Ease Fairview Woman's Woes

    Friday, January 7, 2011

    FAIRVIEW -- It was only a few months ago when Jeannie Kinney said she felt the weight of the world on her shouldersA trusted friend helping Kinney with household chores and errands was indicted for allegedly stealing more than $30,000 and helping to wipe out Kinney's savings. Seemingly, Kinney &md

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    A Concert for a Cause: Country Singer Supports Benson Woman With Rare Disease

    Friday, January 7, 2011

    ALEXANDRIA, Minn. -- A Nashville recording artist performed all over greater Minnesota to raise money for a Benson woman with a rare, incurable diseaseElizabeth Giese was diagnosed with Focal Segmental Glomerulosclerosis, more commonly known as FSGS. This disease attacks the kidneys, and Giese&rsq

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    Local Woman Battles, Raises Awareness for VHL Disease

    Friday, January 7, 2011

    As a television show sheds light on a rare disease, a local woman opens up about her battle with itIn recent episodes of Grey's Anatomy a patient is fighting Von Hippel Lindau. The disease has power to cause tumors in almost any part of your body. If undetected, those tumors could lead to vision

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    Coach With Rare Disease Sidelined for Now

    Friday, January 7, 2011

    Mike Sutton wishes he could offer a concrete answer or even attempt a prediction at the futureHe can’tRight now all the Tennessee Tech head coach knows is that when his team takes the court on Thursday night against Morehead State and on Saturday at Eastern Kentucky, he won’t be on th

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    Jenny Turns Pennies Into Hospital Pound

    Thursday, January 6, 2011

    A Bury pupil who suffers from a rare condition has raised thousands of pounds for the hospital where she is treatedTeenager Jenny Lloyd set up a campaign named Jenny’s Pennies in support of the endocrine unit at the Royal Manchester Children’s HospitalThrough a series of fundraising e

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    Help: Brave Jake Battling Rare Disease

    Thursday, January 6, 2011

    The parents of a brave Peterborough boy struck down by a rare disease, which could claim his life by the age of 10, have made a plea to the public not to forget their sonBubbly Jake Storer-Hamm (4) was diagnosed with Late Infantile Batten disease in January two years ago - a condition that affects

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    Kathryn Weir, of Widnes, Says Rare Cushing's Syndrome Left Her Ashamed to Go Outside

    Thursday, January 6, 2011

    A widnes woman says she feels ‘ashamed’ to go outside after an extremely rare condition saw her pile on the poundsKathryn Weir, of Cedardale Park, suffers from Cushing’s syndrome, a tumorous growth on the pituitary gland which affects only one in 200,000 peopleThe condition is s

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