Life has changed drastically for one Rexburg couple after they found out their daughter has a rare diseaseTwo year old Baylee Bragg has is Opsoclonus Myoclonus Syndrome, or OMS. The disease is so rare, only 1 out of 10 million people are diagnosed with itHer problems started one December evening

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A former Watseka man broke a world record to raise awareness for his daughter's diseaseDustin Shoemaker, a 2000 graduate of Watseka Community High School, lives in Greenup where he counts snowmobile riding as one of his hobbiesOn Feb. 9-10 he rode his Yamaha Attack for 24 hours racking up 1,474.9

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It is estimated that 175,000 people living in Wales have a rare diseaseAs Wales marks Rare Disease Day this week, health editor Madeleine Brindley spoke to one mother about her 13-year fight to get her son diagnosedWhen Chris and Phil Humphreys met their new three-week-old foster son, they were t

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Dylan Uehling is a pretty typical 5-year-old boyHe loves to play outside. He loves playing Mario Kart on the Wii. And he loves anything to do with monster trucks and carsBut there's one major thing that sets him apart from the rest of the kids in his West Central junior kindergarten class - the c

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A teenager who had to quit studying his favourite subject because of a rare disease has been given a helping hand by a local charityPortsmouth and Southsea Round Table presented Denni Edwards with a new camera and equipment to help him when he renews his photography studiesDenni, from Derby Road

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It's every parent's worst nightmare: a child suffering in the grips of a disease that has no nameWhere do they go and what do they do? Three parents who have faced this issue tell their story to Juliana KerrAlthough the issues they’re dealing with are very different, the introduction of a r

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GREEN COVE SPRINGS, Fla. -- A Clay County girl born with Treacher Collins syndrome, a genetic disorder which left her without almost half the bones in her face, now has a new bright spot in her lifeSix-year-old Juliana Wetmore whose story first appeared on First Coast News six years ago, has a new

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I first met Lizzie Pickering 13 years ago when I went to interview her about her two-year-old son HarryBlonde, beautiful and bright as a button, Harry had been diagnosed six months previously with the rare genetic disease Spinal Muscular Atrophy (SMA“We were told it was terminal, incurable

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MASON CITY, IA -- To say Taylor Steenblock deals with something rare may be an understatementIt's so rare she's one of about only 500 people in the world who knows what it's like"She has a genetic disorder called Phelan-McDermid Syndrome,” explained mother, Kathy Steenblock. “It's whe

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A Pulaski couple says they are overwhelmed by all the support they're receiving on behalf of their nine-month-old sonA rare liver disease has young Ethan Burant in dire need of a transplantThe last 6 months have proven to be quite the emotional roller-coaster for the Burant family. When little E

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