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CheckOrphan NewsFlash April 30,…
4/30/2010
CheckOrphan NewsFlash for Tuesday, March 30, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash April 9,…
4/09/2010
CheckOrphan NewsFlash for Friday, April 9, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash April 1,…
4/01/2010
CheckOrphan NewsFlash for Thursday, April 1, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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Men 2010: 12th International…
16–18 September, 2010
This two-day meeting will provide a forum for educating basic and clinical…
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Ribonuclease H2010
20–22 September, 2010
We expect to bring together scientists interested in making as much…
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Third Annual Ultra Orphan…
27–29 September, 2010
Centric Health Resources Presents Third Annual Ultra Orphan Conference…
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Brain, Blood and Iron: Joint…
1–2 October, 2010
The overall objectives of this workshop are to (1) define NA and NBIA…
Events
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Charity Gift Helps Four-Year-Old Through Her Illness
Thursday, August 26, 2010
A young girl with a life-threatening disease has been given the puppy she longed for by a charityThe Starlight Children’s Foundation paid for four-year-old Becky-Anne Croshaw’s new pet, a nine week-old Yorkshire terrier she has named Oliver. The youngster from Edmonton, who suffers fro
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Zachary's Playground: Accessible Fun for All Kids
Wednesday, August 25, 2010
Lake St. Louis, MO -- It's the one place where a child can feel more at home than home - a playgroundAnd on this day in Lake St. Louis, it would have been hard to measure the smiles per hourThis particular playground is 10-year-old Zach Blakemore's favorite and it was built not with a hammer and
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Palmetto Bay Girl, 2, Battles Rare Cancer
Wednesday, August 25, 2010
Family and friends are rallying around a Palmetto Bay 2-year-old in a life-or-death battle against a rare and aggressive form of cancerMia Caleca-Miller was diagnosed with neuroblastoma, a malignant tumor that affects the sympathetic nervous system, on Feb. 19 after going in for a routine pediatri
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Thompson Family, Neighbors Will Conquer Peaks to Overcome Teen's Rare Genetic Disorder
Wednesday, August 25, 2010
Thompson, Conn. -- When Tom Hopkins says he would climb a mountain for his daughter, he means itThe Quinebaug man, along with two of his children and two neighbors, will climb not one, but 11, mountains this week to raise money to cure the rare disease affecting Hopkins’ 14-year-old daughter
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Bald Heads Help Buck Up Co-Worker's Ailing Son
Wednesday, August 25, 2010
LOVES PARK -- About 25 people went bald Tuesday in the name of lifting the spirits of one 2-year-old and his family as the child battles a rare diseaseA few dozen employees of Zenith Cutter Co., including one woman, and friends shaved their heads outside the Loves Park plant to show support and so
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Dog Is a Woman's Best Lifesaver
Wednesday, August 25, 2010
The animals have a reputation for saving their owner's lives, but most don't do it the way Lucy didAnne Kane and her dog, Lucy, do almost everything together. Earlier this year, they nearly died of the same rare illnessTheir story starts the week before Memorial Day, when Kane noticed that her 6-
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Fun Day for Proteus Syndrome Sufferer Billy
Tuesday, August 24, 2010
A mother whose son suffers from a rare genetic disorder is raising money to support research into his conditionBilly Corcoran, 18, is one of just 40 people in the UK with proteus syndrome, an affliction which causes overgrowth of the limbs and organs on one side of the bodyDespite his normal appe
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After Unique Surgery That Treated Rare Illness, Teen Heads Home
Tuesday, August 24, 2010
NEW ORLEANS -- A brave teenager from Destrehan can finally go home after nearly three weeks in the hospitalShe made the decision to be the first person in the world to try a treatment for a rare combination of two diseases. And now Madison Tully's progress is being followed by the medical communit
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Compartment Syndrome: Rare Disorder Tackles Oregon Football Team
Tuesday, August 24, 2010
Three members of a high school football team in Oregon have been diagnosed with compartment syndrome, a rare soft-tissue condition that causes soreness and swelling in their tricepsThe three were among at least 18 players from McMinnville High School who were sickened following a recent practice s
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Surgery Today Could Alter Peninsula Resident's Path With Parkinson's Disease
Tuesday, August 24, 2010
PORT ANGELES -- When Charmaigne Dunscomb undergoes brain surgery this morning, she'll mark a new, welcome curve on a 13-year pathDunscomb, 63, had a friend come over and shave her head Thursday morning in preparation for deep brain stimulation, a procedure aimed at relieving the symptoms of Parkin
