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CheckOrphan NewsFlash April 30,…
4/30/2010
CheckOrphan NewsFlash for Tuesday, March 30, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash April 9,…
4/09/2010
CheckOrphan NewsFlash for Friday, April 9, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash April 1,…
4/01/2010
CheckOrphan NewsFlash for Thursday, April 1, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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8th Annual Encephalitis Conference
Monday, 16 August, 2010
Encephalitis Global, Inc. is happy to invite FACES (Friends And Caregivers…
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David W. Smith Workshop on…
27 August – 1 September, 2010
The goal of the Smith Workshop is to bring together a diverse group of…
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The 15th International Symposium…
29 August – 1 September, 2010
Studies on the sinusoidal cells are becoming increasingly important in…
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Immunotherapy in Pediatric…
9–10 September, 2010
Goals of this conference are to (1) enhance collaboration and cross-…
Events
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Aeras Global TB Vaccine Foundation Announces Appointment of Accomplished Pharmaceutical Executive as President and CEO
Friday, July 2, 2010
ROCKVILLE -- The Aeras Global TB Vaccine Foundation today announced that James E. Connolly has been named President and Chief Executive OfficerHe joins Aeras after a career in the pharmaceutical industry, most recently as Executive Vice President and General Manager of Wyeth Vaccines. He will tak
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Kaitlin Bolton - an Angel in Disguise
Thursday, July 1, 2010
“She wakes up and breathes, why won’t OHIP care for her?&rdquoThe sort of low chair that sits on the floor and normally might hold a baby, provides a comfortable place of repose for Kaitlin BoltonKaitlin is 15 years old and the victim of MLD. Her hands and feet are curled with total i
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Taking Fundraising to New Heights - MediciGlobal's Global eMarketing Director Jumps From 10,000 Feet for Alzheimer's Research
Thursday, July 1, 2010
KING OF PRUSSIA, Pa., and LONDON - Participating in 'extreme charity' events aptly describes the commitment of MediciGlobal's employees to raising money for noteworthy causes. Last year, one of MediciGlobal's new project leaders climbed Kilimanjaro for cancer research, and this year, the same Thi
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Biker Hits Road to Raise Crohn’s Disease Awareness
Thursday, July 1, 2010
FORT WAYNE – It’s nothing for Fort Wayne resident Gordon Given to jump on his motorcycle, ride to West Virginia or Virginia in a day, then head home the next dayHeck, one group of bikers he knows hopped on their bikes and rode to California and back in a weekOn Saturday, though, Given
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A Web of Support
Thursday, July 1, 2010
I am 17 years old and attend Newport Harbor High SchoolOn June 19, I, along with a group of my friends hiked a 5.5-mile trail at Crystal Cove State park to raise awareness and funds for the nonprofit CureDuchenneEight years ago, I met a young boy who was in kindergarten when I was in fourth grade
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Hundreds Celebrate Life of Longview Boy Who Inspired Many
Thursday, July 1, 2010
A 7-year-old Longview boy who touched hundreds of lives while he lived is continuing to touch thousands of lives across the world even after his deathConner Jones died June 24 from complications of cystic fibrosis, a genetic disease that causes mucus to clog the lungs, and prune belly syndrome, a
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A Small World Finds Solace on Sebago's Shore
Wednesday, June 30, 2010
CASCO -- One of the first things Kristin Young learned after her 1-year-old son was diagnosed with Fanconi anemia was that the life-threatening blood disorder affects only one in 350,000 peopleChances were, she would never meet anyone who was going through what her family was experiencing"I felt
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Floyd County Native Uses Her Experiences to Help Others
Wednesday, June 30, 2010
FLOYD COUNTY -- When 13-month-old Natalie Curry was diagnosed with the rare blood disorder Fanconi’s Anemia, she was not expected to live past the age of 10The fatal disorder attacked her body, and a successful bone marrow transplant seemed to be the only option for CurryBut she never got t
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Woman Gets Seasick for a Decade
Wednesday, June 30, 2010
Jane Houghton, 46, suffers from the rare Mal de Debarquement Syndrome which causes sufferers to feel the effects of bobbing about on a rough seaShe developed the condition during the trip to Palma, Spain, in June 2001, and struggled to get her land legs backAlmost a decade later, the mother-of-one
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Montana Hope Project Grants Wish for Bozeman Boy
Wednesday, June 30, 2010
Michael O'Hara thought that he was going to get ice cream at Dairy Queen with his parents and sister on Tuesday night, but instead found four Montana Highway Patrol Officers waiting to present him with an all-expense paid trip to Disney WorldO'Hara, 13, has Shwachman-Diamond Syndrome (SDS), a cong
