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CheckOrphan NewsFlash January 15,…
1/15/2010
CheckOrphan NewsFlash for Friday, January 15, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash January 11,…
1/11/2010
CheckOrphan NewsFlash for Monday, January 11, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash December 16…
12/16/2009
CheckOrphan NewsFlash for Wednesday, December 16, 2009: breaking news about rare diseases, orphan diseases, orphan…
NewsFlash
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WORLD Symposium 2010 (Lysosomal…
10–12 February, 2010
Specific Aims of this meeting are to: 1.) Emphasize the strategies for,…
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2010 Neuromuscular Disorders…
26–27 February, 2010
Featuring a stimulating and progressive programme disseminating the most…
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Rare Disease Day Basel-Zurich
Sunday, 28 February, 2010
February 28, 2010, is RARE DISEASE DAY, a series of events in Basel and…
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Strategic Planning for Pulmonary…
8–9 March, 2010
Anticipated goals and use of results: Formulation of strategy for…
Events
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Boy With Rare Syndrome Fights Time in Transplant Donor Hunt
Monday, February 8, 2010
STOCKTON - Lupe and Ricardo Buzo both grew up on Stockton's tough south side. They met 15 years ago while students at Edison High School and have been a couple ever since. They worked hard and married six years ago with the intention of starting a family. When Ricardo Jr. was born the day before L
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Valentines Day Fundraiser to Help Clandeboye Teen While Undergoing Bone Marrow Transplant for Rare Immune System Disease
Monday, February 8, 2010
Alida Einarson will be showered with a whole lot of love this Valentines DayA benefit fundraiser has been scheduled in honour of the Clandeboye teen on Feb. 14, aimed at helping her family out financially while she undergoes a bone marrow transplantAlida, a 14-year-old Grade 9 student at Lockport
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A Whole Lot of Heart
Monday, February 8, 2010
For one North Bergen child, life has been a series of obstacles, but he has overcome them even when the odds were against himMartha Gonzalez knew when she was four months pregnant that her son would be born with a heart defect. Two days after he was born on Dec. 3, 2005, Daniel underwent open hear
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PA Students and '67 Alumni Reach Out to Help Kaiden
Monday, February 8, 2010
Current Pittston Area High School students along with alumni from the very first Pittston Area graduating class are reaching out to help a baby battling a rare diseaseKaiden Abul-Ela, grandson of retired Pittston Area School District teachers Ray and Rosemary Calabrese, was diagnosed with AT/RT At
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Fighter Battles Rare Disease That Shatters Mixed Martial Arts Dream
Monday, February 8, 2010
It was the hardest hit Chad Cochran says he has ever takenBut it wasn't a punch or a kick that left the fledgling mixed martial arts fighter reeling, struggling to breatheA doctor's preliminary diagnosis, delivered calmly and with compassion, knocked him into a world of hurt"He was telling me as
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MSU Researcher Awarded $2 Million to Tackle Parasitic Tropical Diseases
Friday, February 5, 2010
EAST LANSING, Mich. -- In an effort to eliminate the tropical diseases elephantiasis and river blindness, a Michigan State University researcher has been awarded $2 million to reformulate an existing drug that could stop the debilitating diseases in their tracksCharles Mackenzie, a professor of ve
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Michael J. Fox Foundation Awards $2.8 Million to Drive Development of Parkinson's Disease Biomarker Pipeline
Friday, February 5, 2010
NEW YORK -- The Michael J. Fox Foundation for Parkinson's Research today announced more than $2.8 million in awards for 13 new projects to speed the discovery of biomarkers of PDThe development of biomarkers is of critical importance to increasing the speed and efficiency of PD therapeutic develop
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Global Genes Project to Raise Awareness for Millions of Children Living With Rare Disease
Thursday, February 4, 2010
DANA POINT, CA -- Hope - It's In Our GenesThe Children's Rare Disease Network today announced the Global Genes Project, an initiative designed to raise awareness about the prevalence of rare diseases that afflict millions of children worldwide. Rare disease advocates organizing the campaign select
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Priya Kishnani on Finding a Cure for Pompe: The Extraordinary Efforts of a Real-Life Scientist
Thursday, February 4, 2010
In the new film Extraordinary Measures, a lone, cantankerous scientist, played by Harrison Ford, works day and night over the course of a few years to find a curefor a rare genetic diseaseCalled Pompe, the real-life illness, if untreated, typically kills children before their first birthdayIn rea
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Draper Students Support Ill Utah 2nd-Grader
Thursday, February 4, 2010
Draper -- Willow Springs Elementary second-grader Mark Jeanes was lying in a hospital bed, too sick to walk, when his schoolmates took part in a fund-raising Buddy Run for him last weekThe 7-year-old couldn't hear the students' impromptu chants of support as they walked laps around their Draper sc
