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CheckOrphan NewsFlash, March 2,…
3/02/2010
CheckOrphan NewsFlash for Tuesday, March 2, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash January 15,…
1/15/2010
CheckOrphan NewsFlash for Friday, January 15, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash January 11,…
1/11/2010
CheckOrphan NewsFlash for Monday, January 11, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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Interdisciplinary Training…
15–16 March, 2010
The goal of this meeting is to mentor the career development of a “…
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ICORD 2010: Sixth International…
18–20 March, 2010
The VI International Conference on Rare Diseases and Orphan Drugs (ICORD…
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Improving Musculoskeletal Outcomes…
7–9 April, 2010
The goals of this workshop are to (1) assess the state of knowledge…
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Third NIH Workshop on Gaucher…
8–9 April, 2010
Workshop goals are to (1) determine the appropriate human, animal, or cell…
Events
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Holyhead's Women Footballers Take on Challenge for Amlwch Sisters
Friday, March 12, 2010
A charity football match is set to take place later this month to help raise £400 to £500 to buy new life saving equipment for two young sisters in Amlwch who suffer from a life threatening conditionCybi FC women’s team, set up by former Holyhead and Anglesey Mail reporter Rachel
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PA's Kilimanjaro Climb Raises Awareness, $110K
Friday, March 12, 2010
Climbing Mount Kilimanjaro, at more than 19,300 feet, is so difficult that only 40% of climbers attempting to summit the mountain make it, says Jessica Lazar, MPA, PA-CThe primary reason? Altitude sicknessLazar would know. Not only has she has specialized in treating patients with pulmonary hyper
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Staying Strong: Bone Marrow Match Sought for Dayton Father
Friday, March 12, 2010
Vinod Challagundla learned in December he had a potentially fatal disease, but he didn't want to alarm his mother or pregnant wife. So he kept it to himselfFor three months, the state software consultant quietly searched the Internet for information and snuck away to doctor's appointments for bloo
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Lavaca Police Chief's Wife Gives Him a Kidney
Friday, March 12, 2010
He's a loving husband and father who also happens to be the Lavaca Chief of PoliceShe's a devoted wife and mother who feared for her husband's lifeTwo years ago Phillip and Sherry Beshoner say they were devastated by the diagnosis that he had a genetic kidney disease"I was diagnosed with polycys
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Boy's Stem Cells Rescue Sick Sister
Friday, March 12, 2010
A sick 4-year-old girl is now expected to live a long and healthy life, thanks to her 3-year-old brother, who donated his stem cells to her during an operation this week in Guangzhou, South China's Guangdong ProvinceThe operation, conducted Wednesday, was discussed soon after the girl was diagnose
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Sharing the Caring for the Love of Tom
Friday, March 12, 2010
New mum Angela Kelly knew instantly that something was wrong the moment her son Thomas let out his first little scream seconds after he was born – it sounded like a kittenThe high-pitched squeal told doctors that the beautiful baby boy they laid on his mother’s breast had been bor
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Sisters Battle to Keep Their Hearing, Sight
Friday, March 12, 2010
For Sarah and Ellen Browne, being hearing impaired is hard enoughThe sisters, both students at the University of Texas at Austin, were born profoundly deaf. They have cochlear implants but sometimes have trouble understanding what's being said in conversation or miss announcements in classBut the
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Go Dancing - You'll Have a Ball
Thursday, March 11, 2010
Dancers from as far afield as Adelaide and Mildura will kick up their heels at the annual Hospital Charity Ball Weekend of DanceThe ball, in its third year, is organised by members of the Warrnambool Charity Dance and Warrnambool and District Old Time Dance ClubAfter the success of previous one-d
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Toddler Battles Rare Disease
Thursday, March 11, 2010
Jackson Jinright only says one word, “Mama.&rdquoHis dad, Travis, encourages him to say, “Da-da” but Jackson only smiles and says, “Mama.&rdquo“He calls everybody he loves, ‘Mama,’” said his grandmother, Barbara Jinright of Troy. “And we love
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Injured Cicero Firefighter Struggles With Pain and Finances
Thursday, March 11, 2010
Shawn Ahrens remembers the Valentine's Day fire raging in the Cicero house, the flames suddenly shooting through the roof and knocking down the chimney. Dozens of bricks toppled on the firefighter's head and battered him until he was unconscious and buried alive"Next thing I know, I woke up in the
