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    Guidepoint Global Announces Launch of Genetic Disorder Tracker

    Thursday, February 25, 2010

    NEW YORK -- Guidepoint Global, LLC, a leading primary research firm, today announced the launch of their Genetic Disorder Tracker, a monthly longitudinal data release that captures commercial trends, on a worldwide basis, associated with the treatment of eight rare genetic disorders: Gaucher's Gui

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    Damaged Protein Identified as Early Diagnostic Biomarker for Alzheimer's Disease in Healthy Adults

    Thursday, February 25, 2010

    Researchers at NYU School of Medicine have found that elevated cerebrospinal fluid levels of phosphorylated tau231 (P-tau231), a damaged tau protein found in patients with Alzheimer's disease, may be an early diagnostic biomarker for Alzheimer's disease in healthy adultsThe study published this mo

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    'Rare' Cancers in the Spotlight at Major European Conference

    Thursday, February 25, 2010

    More should be done across Europe to ensure that people with rare forms of cancer are not denied access to the best possible treatment, say the organizers of a major European cancer conference to be held in Milan on 9 and 10 March 2010"People with rare diseases have the same right to receive prope

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    Stem Cells Restore Sight in Mouse Model of Retinitis Pigmentosa

    Thursday, February 25, 2010

    NEW YORK -- An international research team led by Columbia University Medical Center successfully used mouse embryonic stem cells to replace diseased retinal cells and restore sight in a mouse model of retinitis pigmentosaThis strategy could potentially become a new treatment for retinitis pigment

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    Ark Therapeutics Files Cerepro(R) Re-Examination Documentation With the European Medicines Agency

    Wednesday, February 24, 2010

    London, UK -- Ark Therapeutics Group plc (AKT: LSE) ("Ark" or "the Company"), announces that it has filed documentation with the European Medicines Agency ("EMA") in relation to its request for re-examination of the marketing approval application ("MAA") for Cerepro®, Ark's novel gene based Th

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    Aradigm Doses First Patient in Its Second Phase 2b Clinical Trial of Inhaled Liposomal Ciprofloxacin in Bronchiectasis Patients

    Wednesday, February 24, 2010

    HAYWARD, Calif. -- Aradigm Corporation (OTCBB:ARDM) (the "Company") today announced that it dosed the first patient in the U.S. as part of its ORBIT-1 (Once-daily Respiratory Bronchiectasis Inhalation Treatment) trial, an international, randomized, double-blind, placebo-controlled Phase 2b study T

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    Runners Heading to Antarctica

    Wednesday, February 24, 2010

    HILLTOWN -- If you’ve ever thought this past winter has made the region feel like Antarctica, just check back with Steve Kendra, Bill Hardy or Bill Edmonds in about a monthBy then, they’ll be back from the real thing: the three are part of a dozen-person group running a 26.2-mile marat

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    Aidan's Story

    Wednesday, February 24, 2010

    Aidan Grasmick loves exploring Alaska, sloshing down his family’s homemade water slide and Harry PotterLike most 12-year-olds, the Palmer boy enjoys attending sporting events and couldn’t keep from grinning ear-to-ear when he had a chance to touch the Stanley Cup, the storied champions

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    Blood Drive for Delilah

    Wednesday, February 24, 2010

    Delilah Leusch has one of the rarest disorders in the worldIt's called Diamond Blackfan anemia, and it has made her beholden to those who donate blood"We hadn't really given that much thought to donation, but now it's one of the most important things in our lives," said Delilah's mother, Dana Gre

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    Anglesey Mum Walks Two Million Steps to Save Disabled Daughter

    Wednesday, February 24, 2010

    A disabled mum will walk two million steps in agonising pain on crutches in a bid to save her daughter from being left paralysed by a rare brain disorderSusan MacPherson’s daughter Charlotte has to use a wheelchair because of a condition known as Chiari malformation. This causes a hernia of

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