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CheckOrphan NewsFlash April 30,…
4/30/2010
CheckOrphan NewsFlash for Tuesday, March 30, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash April 9,…
4/09/2010
CheckOrphan NewsFlash for Friday, April 9, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash April 1,…
4/01/2010
CheckOrphan NewsFlash for Thursday, April 1, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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8th Annual Encephalitis Conference
Monday, 16 August, 2010
Encephalitis Global, Inc. is happy to invite FACES (Friends And Caregivers…
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David W. Smith Workshop on…
27 August – 1 September, 2010
The goal of the Smith Workshop is to bring together a diverse group of…
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The 15th International Symposium…
29 August – 1 September, 2010
Studies on the sinusoidal cells are becoming increasingly important in…
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Immunotherapy in Pediatric…
9–10 September, 2010
Goals of this conference are to (1) enhance collaboration and cross-…
Events
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If Caught Early, Natalizumab-PML Not Fatal for Multiple Sclerosis Patients
Friday, July 23, 2010
Alexandra Schroder, M.D., the lead investigator from Ruhr-University in Bochum, Germany points out that this is different for those who don't have multiple sclerosis (MS) and get PMLPML, progressive multifocal leukoencephalopathy, is a rare, always serious and often fatal disease that damages the
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Novel Technique Can Detect Abnormal Cells in Lung Cancer
Friday, July 23, 2010
A new technique can identify circulating genetically abnormal cells (CACs) in the bloodstreams of patients with non-small-cell lung cancer (NSCLC), according to a study published online July 22 in Clinical Cancer ResearchRuth L. Katz, M.D., of the University of Texas M.D. Anderson Cancer Center in
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UAB Research Illuminates Genetic Cause of Pulmonary Fibrosis
Friday, July 23, 2010
Researchers from the University of Alabama at Birmingham and Tulane University published work at PloS One (Public Library of Science) that elucidates the variable role of Thy-1 (a glycosyl phosphatidylinositol-anchored glycoprotein) in lung fibroblast development"Immunohistochemical analyses of hu
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Blanchard-Area Man Receives Accessible Ramp
Friday, July 23, 2010
Measuring the space between to two joists on a ramp under construction at a Blanchard-area home Wednesday, Tony Brown called out for a block of wood to keep the joists stableBrown, owner of AE Brown Construction and a member of the Home Builders Association of Central Michigan, was one of several
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Quick Diagnosis, Treatment Saves Child
Friday, July 23, 2010
Olivia Hunter, soon to be in the second grade, has plans of swimming and Happy Meals this summer, nearly two years since a high fever sent her parents scrambling for help and answersOlivia was five when she suddenly became ill. Vicky Hunter, and her husband, Jeff, of Palm Desert, took Olivia to he
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Nigeria's Sickle Cell Indices Worry Health Experts
Friday, July 23, 2010
If recent national statistics on children born with Sickle Cell Disorder (SCD) are anything to go by, then the quest to reduce under-five mortality by two-thirds, which is in line with the Millennium Development Goals (MDG), may remain a Herculean taskThis is because recent data released by the Wo
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Govt Moves to Tackle Skin Cancer in Albinos
Friday, July 23, 2010
As part of efforts to address the rising cases of skin cancer among albinos in the country, the Federal Government, through the Federal Ministry of Health (FMOH), has set up specialised clinics for them in federal hospitalsMinister for Health, Prof. Onyebuchi Christian Chukwu, at the 4th Annual Co
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Butterfly Kids: When Skin Blisters Can Kill
Friday, July 23, 2010
Just days after Jackson Silver was born on Oct. 11, 2007, his parents' joy was replaced with horrorAs the nurse gently removed the bandage from the baby's left heel -- where blood is routinely drawn at birth -- a large patch of skin came off with itJackson was diagnosed with epidermolysis bullosa
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Football Match Held for Ill Skelmersdale Toddler Joseph Stockton
Friday, July 23, 2010
A charity football match is being held in honour of a Skelmersdale child who suffers from a rare brain disorderTwo-year-old Joseph Stockton was diagnosed with Lissencephaly after he began having seizures when he was just four months oldThe condition can lead to a reduced life expectancy and leave
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Nationwide Children's Hospital Chosen as Batten Disease Center of Excellence
Friday, July 23, 2010
Columbus, OH -- Nationwide Children’s Hospital has been selected as a Center of Excellence by the Batten Disease Support and Research Association (BDSRA), the largest research and support organization in North America for families that have children with Batten diseaseBDSRA chose Nationwide
