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CheckOrphan NewsFlash, March 2,…
3/02/2010
CheckOrphan NewsFlash for Tuesday, March 2, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash January 15,…
1/15/2010
CheckOrphan NewsFlash for Friday, January 15, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash January 11,…
1/11/2010
CheckOrphan NewsFlash for Monday, January 11, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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Brain, Blood, and Iron: Advances…
13–14 March, 2010
The overall objectives of this workshop are to: (1) define NA and NBIA…
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Diamond Blackfan Anemia…
13–15 March, 2010
This conference is expected to generate immediate and long-term…
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Interdisciplinary Training…
15–16 March, 2010
The goal of this meeting is to mentor the career development of a “…
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ICORD 2010: Sixth International…
18–20 March, 2010
The VI International Conference on Rare Diseases and Orphan Drugs (ICORD…
Events
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Go Dancing - You'll Have a Ball
Thursday, March 11, 2010
Dancers from as far afield as Adelaide and Mildura will kick up their heels at the annual Hospital Charity Ball Weekend of DanceThe ball, in its third year, is organised by members of the Warrnambool Charity Dance and Warrnambool and District Old Time Dance ClubAfter the success of previous one-d
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Toddler Battles Rare Disease
Thursday, March 11, 2010
Jackson Jinright only says one word, “Mama.&rdquoHis dad, Travis, encourages him to say, “Da-da” but Jackson only smiles and says, “Mama.&rdquo“He calls everybody he loves, ‘Mama,’” said his grandmother, Barbara Jinright of Troy. “And we love
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Injured Cicero Firefighter Struggles With Pain and Finances
Thursday, March 11, 2010
Shawn Ahrens remembers the Valentine's Day fire raging in the Cicero house, the flames suddenly shooting through the roof and knocking down the chimney. Dozens of bricks toppled on the firefighter's head and battered him until he was unconscious and buried alive"Next thing I know, I woke up in the
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Coach Helps Kid, Finds New Home
Thursday, March 11, 2010
As the Harvard women’s basketball team walked off the court Tuesday night, they knew that the rest of the year would be differentWith the season over, weekends would no longer be dominated by traveling and back-to-back competitions, and practices would not consume every free moment of time.
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Cougars Clean Up in MACHA Honors
Thursday, March 11, 2010
The brooms were working overtime - it was a clean sweep for the SIU Edwardsville hockey team in Mid-America Collegiate Hockey Association postseason awardsSIUE walked away with four individual honors and four players were named to the all-league first teamSIUE head coach Larry Thatcher, who led t
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Mother, Daughter Cope With Uncommon Condition, Complex Insurance
Thursday, March 11, 2010
Barbara Lind of Bourne, owner of the Tin Man Diner in North Falmouth, knows about helping people in needShe formerly worked at a group home and regularly hosts free lunches for people with mental illness and other challengesBut these days the subject of Lind's advocacy is closer to homeShe says
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Happy Birthday Seth
Wednesday, March 10, 2010
SPEARFISH -- From a distance Seth looks like any tired 8-year-old boy taking a nap on a couchA “Thomas the Train” blanket covers him as his head rests on a pillowThen you notice it. A box of medical supplies is lying on a table in front of the brown-haired child. A tube runs to his no
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The Watery World of a Little Figtree Boy
Wednesday, March 10, 2010
A pesky little molecular glitch makes life tough for this little boy whose thirst is so fierce he drinks in his sleepLiam Walter, 5, of Figtree, has a disorder known as nephrogenic diabetes insipidus, which interferes with his kidney's ability to conserve waterSufferers urinate on average every h
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At an FDA Workshop, a Mom Looks for Help
Wednesday, March 10, 2010
CLAREMONT, Calif. -- Among the 14 groups at the Food and Drug Administration workshop that filed applications for orphan drug designation, Chris Hempel—part of a small team—stood out in her long-sleeved T-shirt and jeansThe corporate potential applicants at the event tended to guard th
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Bungee Jump for Boy With a Rare Disorder
Tuesday, March 9, 2010
Daredevil drinkers at a Burton pub are to bungee jump to raise money for a six-year-old boy with a rare genetic disorderRegulars from the Uxbridge Arms, in Queen Street, will take the plunge to help Oliver Powell, of Derby Street, lead a more independent lifeThe Grange Infant School pupil has Nai
