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CheckOrphan NewsFlash April 30,…
4/30/2010
CheckOrphan NewsFlash for Tuesday, March 30, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash April 9,…
4/09/2010
CheckOrphan NewsFlash for Friday, April 9, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash April 1,…
4/01/2010
CheckOrphan NewsFlash for Thursday, April 1, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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8th Annual Encephalitis Conference
Monday, 16 August, 2010
Encephalitis Global, Inc. is happy to invite FACES (Friends And Caregivers…
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David W. Smith Workshop on…
27 August – 1 September, 2010
The goal of the Smith Workshop is to bring together a diverse group of…
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The 15th International Symposium…
29 August – 1 September, 2010
Studies on the sinusoidal cells are becoming increasingly important in…
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Immunotherapy in Pediatric…
9–10 September, 2010
Goals of this conference are to (1) enhance collaboration and cross-…
Events
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Two Friends Walk Across America to Raise $100,000 for Charity
Tuesday, July 13, 2010
Two New Jersey men are trekking across the country for charityRob Bonora and Anthony Greco, two natives of Nutley, New Jersey, have been stopped, applauded, harassed and even questioned by police as they trudge across the nation with a baby stroller full of water bottles, food and bandagesDespite
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Leukaemia Boy Celebrates Survival
Tuesday, July 13, 2010
One year ago, 12-year-old Joshua King was a very sick little boyHe had undergone gruelling chemotherapy and faced a long recovery following a bone marrow transplant. Today, Josh is back at school and once again able to take part in the sports he so loves, thanks to the generosity of a stranger who
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Benefit Scheduled for 2 Year Old With Rare 'Orphan Disease'
Tuesday, July 13, 2010
BAY RIDGE -- What is an “orphan disease?&rdquoIt is a disease that is so rare, that strikes so few people, that it doesn’t generate government-supported research or interest by the pharmaceutical industryLangerhans cell histiocytosis is one of those diseases; an extremely dangerous bl
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Man's Bad Stomach Ache Was Rare Cancer
Tuesday, July 13, 2010
Life changed for a young Metairie family in an instant with the diagnosis of a rare illnessBut they were lucky, and found it early and now they want others to know the symptoms in hopes of doing the sameIt was a normal July weekend for the Connicks two years ago, with their two young sons. But th
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Can a Controversial New Treatment for Multiple Sclerosis Offer Relief?
Monday, July 12, 2010
Mark Walker is what the NHS calls an “expert patient&rdquoHe’s someone who knows all there is to know about the disease that has shadowed his existence on and off, for nearly 20 years, forcing him to give up the high-flying job he adored, and curtailing an active life. Walker asks diff
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Boy, 8, Receives Widespread Support for His Rare Affliction
Monday, July 12, 2010
Terri Gibbs was concerned that her 5-year-old son, Hank, looked puny, tired and sickBut the increasingly dark circle under his left eye and the mocha-colored streaks on his sunken left cheek didn't bother Hank – he felt neither tired nor sick, and wasn't at an age where he felt particularly
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Dallas-Fort Worth Teen Gets Chance to Connect With Others With Rare Disorder
Monday, July 12, 2010
Starting in preschool, Kaitlyn Aldrich always towered over her classmates"People just always saw me as that tall, skinny girl," she said. "I learned how to deal with itBy the time she got to middle school, Aldrich stood 5 feet 10 inches and weighed 88 pounds. Some people thought she was anorexic,
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Local Company May Hold Key to Medical Miracle
Monday, July 12, 2010
There’s nothing worse for parents than seeing their children sufferBut what do parents do when doctors tell them there is nothing that can help make your sick child betterIn October 2007, Chris and Hugh Hempel, of Reno, Nevada, learned that their twin daughters, Addison and Cassidy, have an
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Sierra Trek a Step in Fight Against Rare Cancer
Monday, July 12, 2010
Hiking all 211 miles of the John Muir Trail from Yosemite to the summit of Mount Whitney is a challenge for any hikerFor Annette De Bow, the difficulty is multipliedDe Bow, 44, has a rare, chronic blood disease called polycythemia vera, which means her bone marrow makes too many red blood cells t
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Paris Teen Award James Hillier Scholarship
Friday, July 9, 2010
Eighteen-year-old Zach Jacobi is fascinated by discoveryExploration of the unknown and finding answers and solutions to tough questions is a way of life for the Paris teen. He was one of three recipients recently awarded the James Hillier Scholarship. Jacobi will receive $5,000 renewable for four
