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CheckOrphan NewsFlash April 30,…
4/30/2010
CheckOrphan NewsFlash for Tuesday, March 30, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
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CheckOrphan NewsFlash April 9,…
4/09/2010
CheckOrphan NewsFlash for Friday, April 9, 2010: breaking news about rare diseases, orphan diseases, orphan drugs, and…
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CheckOrphan NewsFlash April 1,…
4/01/2010
CheckOrphan NewsFlash for Thursday, April 1, 2010: breaking news about rare diseases, orphan diseases, orphan drugs,…
NewsFlash
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8th Annual Encephalitis Conference
Monday, 16 August, 2010
Encephalitis Global, Inc. is happy to invite FACES (Friends And Caregivers…
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David W. Smith Workshop on…
27 August – 1 September, 2010
The goal of the Smith Workshop is to bring together a diverse group of…
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The 15th International Symposium…
29 August – 1 September, 2010
Studies on the sinusoidal cells are becoming increasingly important in…
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Immunotherapy in Pediatric…
9–10 September, 2010
Goals of this conference are to (1) enhance collaboration and cross-…
Events
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Fisherman Takes Leap of Faith for Haemophiliac Son
Wednesday, July 7, 2010
Brixham fisherman John Atkinson is swapping the sea for the sky to take a daring leap of faith in aid of his sick son CorbynJohn and his fishing pal Dean Thomas are planning a sponsored skydive on July 20 to raise money for the Haemophilia SocietyJohn's son Corbyn, three, was diagnosed with sever
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Girl, 13, Will 'Bleed to Death' Without Donors
Wednesday, July 7, 2010
A girl whose life was saved by a bone marrow transplant from her brother has appealed to blood donors to come forward to keep her aliveDevaanshi Mehta suffers from a rare disorder that means she is dependent on having a transfusion of blood cells called platelets every eight days - or she will ble
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Life-Saving Gift for Brave Tot
Wednesday, July 7, 2010
A toddler who had both kidneys removed because of a rare illness is set to receive the ultimate birthday giftDoctors have set a date for Ella Chadwick’s kidney transplant at Manchester Children’s HospitalHer doting dad Martin Chadwick will donate his left kidney to Ella two weeks afte
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'Regular' Girl Battles Irregular Circumstances
Wednesday, July 7, 2010
NORTH BRUNSWICK -- “I’m plain"I’m regular,” 19-year-old Te’ La Curtis-Lee humbly declared. This singer, actress, college student and cancer survivor is a lot of things, but she is far from plainCurtis-Lee was diagnosed with thyroid cancer when she was 16 years old. A
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C'ville Family Continues Search for Kidney Donor Hero
Wednesday, July 7, 2010
The worsening condition of the 18-month-old Carpentersville boy, in desperate need of a kidney transplant, has his mother, Tina, wondering if her little brown-eyed boy will ever be saved in timeAs Tina and her family actively search for a kidney donor, Nathan's biweekly blood tests monitoring kidn
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Brave Brother and Sister With Killer Disease Enjoy Birthday Celebrations With President
Tuesday, July 6, 2010
A young brother and sister who suffer from the rare Batten disease met the President at the weekend to celebrate one of their birthdaysSaoirse (5) and Liam (2) Heffernan suffer from the fatal genetic condition, and they are waiting for a chance to receive life-saving treatment in AmericaBut Liam,
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Survivor of Lymphoma Celebrates Remission
Tuesday, July 6, 2010
Ryan Swanson of Germantown has learned how precious life is and how fragileSwanson, 29, who recently opened Ryan Patrick Salon in East Memphis, is a cancer survivor. He was diagnosed with late-stage Hodgkin's lymphoma at age 25, but will celebrate three years of full remission in AugustSwanson wa
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Teen's Ts Raise Money for Cystic Fibrosis Research
Tuesday, July 6, 2010
NORTH ANDOVER -- Amanda Tobin was forced to get creative when her costume for a dance recital didn't arrive on timeSo the 17-year-old grabbed a paint brush and made her own, along with one for her partner in a duet, using a splatter technique that soon became a hit with her colleagues at the North
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Benefit to Help With Family's Medical Expenses
Tuesday, July 6, 2010
Sam Napier was injured at work during his junior year in college and now lives his life in a wheelchair, but the pain and agony he feels for his wife and two children far outweighs anything he has ever had to deal with personallyHis wife, Lori, daughter Sami and son Nick all suffer from Ehlers-Dan
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Aurora: Local Photographer Sees Through a Different Lens
Tuesday, July 6, 2010
AURORA -- Jim Braun makes a living with a lensHis eye and camera capture creative visual imagesJim has Marfan's Syndrome, a rare disorder of the connective tissue that helps the body grow. The disease can affect the heart, bones and, in Jim's case, his eyes"It limited what I could do and see," J
