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    Tot With Disorder Is 'the Happiest Kid'

    Friday, September 3, 2010

    When most people get a cold, they cough and sneeze and sniffle until it goes awayCharlie-Anne Cox can't do that. The 14-month-old's muscles are too weak to cough and the mucus drains into her lungs"Just taking a breath, that's just running a marathon for her, it sounds like at times," says her da

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    Norfolk Baby's Life Hangs by a Thread

    Friday, September 3, 2010

    A community is rallying to fund comforts and pleasures for a seriously-ill north Norfolk baby whose life could end at any timeLittle Lauren Taylor has the rare chromosome disorder Patau's Syndrome and is blind, partially deaf, needs extra oxygen to breathe, is tube fed, has kidney problems, extra

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    Goddess Hair Extensions Founder Nominated for American Cancer Society Award

    Friday, September 3, 2010

    SUNNYVALE, Calif. -- Sheila Matechuk, Developer of Goddess Hair Extensions & Replacement, has been nominated for the American Cancer Society's prestigious "Lane Adams Award" honoring individuals who "demonstrate innovative and collaborative approaches to enhancing the quality of life for Mate

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    St. Jude, Chili's Expand Online Giving Efforts During Seventh Annual Create-a-Pepper to Fight Childhood Cancer Campaign

    Thursday, September 2, 2010

    MEMPHIS, Tenn. - St. Jude Children's Research Hospital® and Chili's® Grill & Bar are tapping into the power of the digital world, making it easier than ever for guests to donate to St. Jude during the seventh annual Create-A-Pepper to Fight Childhood Cancer campaign. September is Chili

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    Inaugural Fundraiser to Be Held to Stop Rare Disease

    Thursday, September 2, 2010

    The luminous glow of a firefly in the dark sky can be seen as a symbol of hope that blinks its way through the nightFor those affected by mitochondrial diseases, however, the firefly represents even moreMitochondria, the energy factories of cells, help fireflies light up and that same cell organ

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    Fundraiser Nets $4,300 for Infant With Rare Cancer

    Thursday, September 2, 2010

    A total of $4,300 was raised for 9-month-old Carter Beckner at an event Saturday at the Crossroads Ruritan ClubNearly $1,900 was raised by a benefit softball tournament earlier this month. Approximately $5,900 has been donated to the child who is being treated from Neuroblastoma. The disease is a

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    KU Alumna's Outlook on Life a Positive Influence She Left Behind

    Thursday, September 2, 2010

    When Stan Loeb tells people about Jessica Roark, he often talks about her positive outlook. But it often just sounds inadequate, he admitsThe words don’t seem to do much justice in describing the KU alumna from Meriden who earned two degrees while battling a rare form of cancer“She ne

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    Hannah's Hope Wins $250,000 Prize

    Wednesday, September 1, 2010

    Hannah's Hope won a $250,000 prize, according to a Pepsi officialThere was confusion earlier Wednesday about whether the charity founded by a Clifton Park family had won the grant in a Pepsi Refresh contest. Only the top two finalists receive the grants, and Hannah's Hope was listed as "3rd place"

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    The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition

    Wednesday, September 1, 2010

    DANA POINT, Calif. - All Kids Deserve To Have Hope For A Cure – The 'Vote4Hope' Pepsi Refresh Rare Disease Campaign starts today. The Children's Rare Disease Network (www.crdnetwork.org) and The Global Genes Project (www.globalgenesproject.org) are inviting the public, as well as caregivers,

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    Inaugural Berkshire County Walk to Defeat ALS Aims to Bring Awareness and Funds to Lou Gehrig's Disease

    Wednesday, September 1, 2010

    On Aug. 28, sitting in a purple beach chair on the patio of his parents’ Becket lake house, John Keator, an average-built 44-year-old with cropped salt-and-pepper hair, chatted with friends. Keator and his wife, Georgette, had invited their friends to the lake for one last get-together before

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