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    Blake's Family Needs Help

    Friday, August 19, 2011

    Friends and family of a local infant born with a multitude of serious health issues are reaching out to the community for helpLittle more than a month old, Blake Lafortune has several birth defects including problems with his lower spine, one kidney, and abnormalities in his leg bonesA colostomy

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    Girl, 4, Has Rare Disorder That Means Tripping Over Could Leave Her Locked in Her Own Body

    Friday, August 19, 2011

    Bumps and bruises are part of every child's life growing up - but one young girl she has to be more careful than mostFour-year-old girl Jasmine Sanderson has a rare genetic condition that causes bones to form in her muscles - locking her into her own bodyEven the slightest knock could trigger a p

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    A Great Big Day for Little Jasper

    Friday, August 19, 2011

    This column started off a lot differently than it endedWhen I started to write it Thursday, I was steamed about the cold-hearted treatment little Jasper More was getting from Ontario’s health ministryJust two-and-a-half years old, Jasper has mucopolysaccharidosis VI (MPS VI), an inherited, life

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    Coping With Childhood Form of MS

    Friday, August 19, 2011

    Rare disease doesn’t stop Genck from her favorite activitiesStephanie Genck walks with a limp because her left side has lost a lot of muscle use. Her speech is sometimes impaired. She sometimes has lapses of memoryAll are characteristics of Multiple Sclerosis, a disease of the muscles that affe

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    MENIFEE: Young Boy Battles Rare Disease

    Friday, August 19, 2011

    At first glance, Joshua Clarke seems like a normal, happy 4-year-old boyHe loves tae kwon do; fantasizes to the tales of Harry Potter; swims; watches cartoons and plays video games; and gives "Maggie," his grandparents' Labrador retriever, a big hug whenever it seems rightBut dig a little deeper

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    McCune Still Has Hunger to Coach

    Friday, August 19, 2011

    Phil McCune figured Brad Steward would ask for a casseroleBut the Ventura High football coach requested something a bit more labor intensive following the death of his wife NancySteward wanted McCune to return to Ventura to coach the secondary this seasonMcCune coached the Cougars for 30 years b

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    Family of Jack Waller, From Thornton-le-Dale, Raise Awareness of Epidermolysis Bullosa (EB)

    Thursday, August 18, 2011

    THE parents of a two-year-old boy who suffers from an extremely rare skin disorder are campaigning to raise awareness of the conditionJack Waller, from Thornton-le-Dale, was born with Epidermolysis Bullosa (EB), a currently incurable genetic condition which causes blistering of the skinThe disord

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    Confusion and Hope for Meyer Family

    Thursday, August 18, 2011

    Flagler women's soccer coach Teddy Meyer, and his wife, Heather, aren't sure of much these daysWhat will happen when their 5-month-old daughter, Palin, who was born with the very rare Prader-Willi Syndrome, grows up? Will she be able to do something as simple as going to eat with friends? Will the

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    OC Triumphs in Battle for the Bridge

    Thursday, August 18, 2011

    The event was nearly a century in the makingOregon City and West Linn, one of the most longstanding rivalries in prep football, have for years drawn large crowds of boisterous fans from both sides of the river. Saturday night that rivalry was put to good use as it drew hundreds of people to a full

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    Illness Makes Kindergarten a Challenge for Hillsborough Girl

    Thursday, August 18, 2011

    Laura Tobia would like it if her whole bedroom were pink, not just the walls and chairs and throw rugsShe wears a plastic princess tiara. She likes books, lately one about Snow White. "I'm going to kindergarten," she says.  That may or may not happenA rare cellular disorder makes it hard for 5-y

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