Gaucher Disease Type 2, Gaucher Disease Type 3
3/30/2009 07:31| More
This is my daughter Hannah. She is 7-1/2 months old, and she was recently diagnosed with Gaucher's Disease type 2 or type 3. Both types are a very rare, fatal, genetic metabolic disease with painful physical symptoms and severe neurologic decline.
I don't want to see my baby daughter die.
My iWish is to find outlets to help me share her story, create awareness for this disease, and hopefully, in turn, raise the funds needed to fight this disease. When you are faced with a very rare disease (just a few hundred children in the world have it), there is very limiting funding and researchers out there -- almost as if our children are invisible to the world.
I want the world to know about Hannah and the other kids with Gaucher's Disease type 2 and type 3. We need their help to fight with us.