Rare diseases need your voice, creative solutions and iWish.

iWish is designed to give rare diseases a voice and a face. Through your help, together we can help change the way the world looks at rare diseases by sensitizing people to their monumental needs.

How to participate:

Picture (optional) - With your contribution, together we can change the way the world looks at rare diseases. We are looking for:

  • your artistic picture that will help the world connect or identify with a rare disease or diseases
  • pictures that show the world what it is like to live with a rare disease

Contributions can be actual photographs or they can be artistic representations. Don't be afraid to reach out and be creative.

NOTE: any violent, racist, pornographic or offensive pictures will be banned.

iWish (required) - Now its time to write your iWish. Here are the points that you should include:

  • A description about your picture (required if you submit a picture)
  • Your iWish for a rare disease or diseases (required)
  • Your experience with a rare disease or diseases (optional)

NOTE: any racist or offensive content will be banned.


  • Rare Disease Day Basel "wissen Heilt"

    3/24/2010 12:24

    I wish more people participate and visit the Rare Disease Day event organized by Access Association/CheckOrphan on Sunday 28 february 2010 in 2011.…

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  • Inflammatory Breast Cancer

    5/12/2009 16:32

    The image is our t-shirt from our fundraising event for Squeak who has IBC. Like the heat of a flame we are spreading the word about Inflammatory…

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  • Mucopolysaccharidosis Type 1

    5/12/2009 12:56

    This is myself - I do not have all of the facial features of MPS I, although the ones that are there are what helped diagnose me - basically you just…

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  • Duchenne Muscular Dystrophy

    5/12/2009 12:53

    The child displayed in the picture suffers from Duchenne muscular dystrophy (DMD) a group of genetic disorders that affect the use of muscles in the…

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  • GENERAL

    3/30/2009 08:40

    As a young child my mom did her best to shield me from cartoons (which eventually became a futile attempt), and steer me towards educational program…

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  • Mucopolysaccharidosis Type II

    3/30/2009 08:39

    Because many rare diseases are genetic, a huge number of those afflicted with them are children, many very young. As a result, many of the stories…

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  • Pachyonychia Congenita

    3/30/2009 08:37

    I wish every patient in the world with Pachyonychia Congenita (PC) will connect with other PC patients who understand the pain (emotional and…

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  • GENERAL

    3/30/2009 08:32

    I have managed for several years a Swiss national HIV/AIDS project. This work gave me a closer insight into all aspects of HIV/AIDS and I have become…

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  • Gaucher Disease Type 2, Gaucher Disease Type 3

    3/30/2009 07:31

    This is my daughter Hannah. She is 7-1/2 months old, and she was recently diagnosed with Gaucher's Disease type 2 or type 3. Both types are a very…

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  • Myelodysplastic Syndromes, Acute Myeloid Leukemia, Adult

    3/17/2009 11:10

    Last winter after Christmas my father seemed to have persistent colds and stomach problems. Naturally my mother was slightly concerned but not…

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